Ben had an ok morning but it gradually deteriorated as the day went on. His self administrating PDA was removed so the expectation was that the pain team would again need to find the right dosage of morphine and his other pain medications.
He had a nice visit from Francis and Gema. When they left if all went a bit pear shaped for Ben and he was in terrible pain for a few hours.
It was all a bit full on today with no breaks in between washing, rolling and dressing changes. As soon as this was over it was the physio's getting him in and out of the wheelchair. Too much for a very hot day and not well controlled pain releif.
Sad and disressing day for Ben - hon you are amazing and doing a fantastic job - weak you are not!!!! Everyone is willing you on. Keep strong honey you are gonna have good days and crap days but everyday is a day nearer to you coming home lovely boy xx
We love you bundles and will be here every step of the way with you x
Bring on the liquid morphine please!
Mumma, Dad and Sambo
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