Monday 27th June

Spirits low all round at the minute we are all trying but this is just so hard especially for Ben

Another week, another Monday, another busy mad doctors day - So here we go -  pain medication not as controlled as it should be so thats been tweeked and added to

Bens iron work will be removed in 3 weeks time

Right leg really really painful

Catheters still infected

Booked into Barts nextt Tuesday for cyctogram and catheter change

Still on IV antibiotics

Ben has no energy is knackered, tired and miserable

Cheered up when visitors came today

The ward is hot and mad busy with too many visitors and it stinks!  Tempers are frayed. I was furious when I found out Ben  was fluked  into signing some visiting rules and regulation agreement.  When I found out I lost my rag, stormed into the nurses station snatched it back and ripped it into pieces in front of the nurses face whilst going into one at the same time! It took me 20 minutes to calm down, return and apologise. I have requested a meeting with the ward sister in the morning to disucss the care that David and I give to Ben on the ward day in day out.

More news but I dont have the energy to go into detail as things will probably change yet again tomorrow. Basically Ben  has another infection and he wont be able to come home until after his procedure at Barts tomorrow week or poss the Weds ...................................................................

Its been such an emotional day and it is obvious that Bens needs are changing constantly both mentaly and physically. We are a very close and loving family with a strong network of family and friends and will take this journey together. Our only concern is for Ben at the moment and if we upset anyone along the way we can only apologise and ask you to understand.

Thanks to everyone for their visits and messages of support please keep them coming as its good medicine for all of us especially Ben

Thank you to my sister Tina for everything - I love you the world

Cant wait to see Sam tomorrow

I am so worried about lady I met on Thurdsay evening in the hostel as I havn't seen her about?  Her hubby was involved in a hit and run cycle accident and has similar injuries to Ben - he is in intensive care. Fingers crossed he will do as well as Ben. We shared a bottle of sauvignon, talked about Ben and her hubby and had a big cuddle at the end of the evening. Be strong Mandy I am sure your man will do good xx


Lots of love

Mumma, Dad and Sambo