Sunday, 31 July 2011

Sunday 31st July

Cant  beleive I have not  blogged since the 21st - dont know where the time goes! Apologies

Bens doing good :)  He has been really fed up with not being able to be vertical which is understandable!

We had two hospital visits last week the first was with the urologists to make sure Ben was fit for surgery next week.  He is going into Barts on Wednesday for Cystoscopy and urethroscopy these will assess the bladder and urethra to see if they are repaired. If the damage is repaired the surgeons will decide best way forward for retraining.  If things are not as they should be they will make sure Bens perineal wound is sufficiently healed for surgery and perform  a urethroplasty repair. So come Wednesday you guys please blow all your positive energy towards Ben

Out second visit last week was with the orthopaedics.  Bens pelvis was xrayed again and they were happy with this  - the pelvic structure  is an inch or so off line but this should not be a problem.  There is an area at the front of the pelvis which has not repaired but is filling with scar tissue.  Again the surgeon said this should not be a problem as the majority of the strength and weight bearing goes through the back of the pelvis. Ben was put back from being vertical until his next appointment on 17th August - he was upset about this :((   The consultant also spoke about the nerve damage in Bens righ leg it was not very encouraging but we are not taking to much notice at the minute as it is still very early days and Ben continues to amaze the professionals with his progress - his nerve damage is all about timing and regeneration - we are working on his nerves being like little sperm rather than little slothes!  "Positivity is the key"

Things are going well at home.  Ben is sleeping a lot but thats fine sleeping is helping his to heal.  He is eating and drinking well.  The nurses are still coming in but arn't much good to be honest but I suppose a bit re assuring when they assess Bens wounds.  The wounds are doing really well - it will be great when they are healed - another thing for him not to have to think about.

We still have not seen the OT or the physio bitch!  We have been home a month and she has visited only once.  She has also been on holiday and will call me tomorrow.

Physio in the community seems shite - I am investigating private physio but to be more specialised in pelvic rehabiliatation - so if you are reading  this and have some spare time feel free to have a google and inbox me the details - thank you xx    (also considering inpatient rehabilitation so again please help me find somewhere)

You guys who have been working with Ben thanks so much it is really helping and much more inspirational for Ben to be working with someone rather than on him own.  If there is anyone else who can spare an hour at some stage to work with Ben please drop me a text - it will really help to get Ben strong ready for when he is vertical and starts to learn to walk again.  (07989 356491) you Bywaters boys cant get your arses over here if you like :)) (pretty please)

Ben is transferring from bed to chair a lot easier now and does so everyday.  He is spending longer and longer in the wheelchair and does his workout in the chair.  He is comfortable with a good four hours now.

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