Monday 21st July

Hi all

I know I said last week that I was going to try hader to keep this up to date - I did try but there just dont seem to be enough hours in the day!  If I dont get in the shower more often will have Health & Safety visit us :((

Bens doing ok - the sleeping on the side didnt last we forgot to take into account he has the stoma on one side and catheter on the other, so its back to sleeping on his back and ever decreasing butt :(

Last Friday we had ambulance back to Barts for EMG - the nerve conducting test for his right leg.  They have identified which nerve is damaged - next step is to have scan to ascertain what the actual damage is.  Awaiting an appointment.

The weekend was nice for Ben he had 'The Boys' round for a Fifa challenge which went on till about 2 in the morning I think - needless to say he was knackered the next day but they all had a fun time!  Thanks boys :))

Its been a bit stressful as its so hard to fit everything that needs to be done. Bens been quite uncomfortable again especially when sleeping - think its the rod and screws going through the back of the pelvis and as he is always on his back and has no arse its painful - especially when its time to sleep and there are no distractions.  Waiting for the viability specialist to call me today for some advice.

Occupational Health have promised the world but we have not heard a word for 2 weeks - still awaiting all sorts of stuff and am totally pissed off with latest WANKERDOM - Tim the Twat grrrrrrrrr
I wrote this hours ago then stuff happened so just gonna push post

xx