Monday 4th July

Bloody hell cant believe its July!!!!!  There will be Christmas stuff in the shops soon  :0

Anyway we are home for now, its great to have Ben here, there were a few days when we didnt think that would ever happen again ................................... so we are the happiest little peeps in the world :)))))

As far as we were concerned transfer to Queens hospital was not an option for now or any future inpatient rehab so our Benno is back with us - being at home will I am sure only speed Bens recovery  :)

Its great but it is also very difficult as we all have to find new ways to do things. This stupid house really isnt big enough or practical  for our current situation  but we are making the most of what we have. Some furniture moves, little purchases and changes as the needs arise are making things easier day by day.

Its especially hard for Ben as he now been removed from the safety of  hospital back to what was 6 weeks ago 'normal' - this is the new 'normal' for now and Ben is trying to come to terms with that. He is also  learing to trust us (if he asks me to explain his drugs each time I administer them once more I will pour them over his head! - lol - only joking hon if you read this)

We had a quite weekend so that we could try to settle in  and get into a bit of a routine. Appoinments all sorted for district nurses, occupational health specialists and physios. Procedures now worked out and understood for getting new drugs, booking ambulances, ect ect.

The days  fly by as there is just so much to do and routine is absoluely impossible! I am writing this at 0600 on Tuesday from the sofa downstairs and my alarm has gone off for another lorry load of tablets to be given  ( thanks Rachel for sleeping on the sofa on Saturday - I got some much needed kip)

Bens has a hospital bed which is great but the mattress is shite - in hospital he had an air mattress - the district nurses ordered Ben the sam but it was delivered with a lower grade foam matress.  I have been trying for four days now to get this sorted as Ben is really uncomfortable with pillows under his butt and legs and spine :((     Bleeding joke community services no one knows what they are doing are must talk to themselves cos they definately dont speak to each other! If they just say either yes or no - that wasy I can sort if out myself

The nurses are booked in daily for wound care and dressing changes - again they are absolutely crap I could do a better job myself - infact I will when I have nicked enough of their stupid prescious bloody dressing and saline. Dont think they like me much but dont give a shit to be honest,

Lets hope today is better with the occupational health and pysiotherapist - we are lacking in such basic equipment - ummmmmmmm this will be interest but I promise to be good ;)

Not finished and no idea if what I have written makes any sense as not read over - fell asleep with laptop on lap.gonna publish and check later.

Gonna go to sleep

Bye for now zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz xx