Ben seems brighter today, made all shiny and squeeky clean 'a la Rachel'
He is eating and drinking better again. When I came in earlier he had just managed a little go with the zimmer frame. Still has addominal pain and has been sleeping ever since.
He is cross with himself because of the so called 'backward step'
Please stop beating yourself up Ben you are still progressing at a rate of knots! Be proud of yourself, we all are of you.
Things are going to continue to get better day by day.
You ARE amazing
Well done Super Ben
xx
Sunday, 28 August 2011
Saturday 27th August 2011
Bens still here in Barts, its been utter crap for him for the past few days. He has been in a lot of abdominal pain which has restricted him to laying flat on his back once again. Ben is totally pissed off and down in the dumps :(( When he comes home he's gonna need you guys to bring him back up and help him get back into shape as his exercise and weights have gone out of the window for the past week.
Urologically Ben seems to be responding well to the antibiotic the microbiologists have put him on. As long as he continues to respond he will be able to continue the treatment at home. The doctors are talking about Ben coming back home again on Tuesday. Mr Junaid his consultant urologist has been away on holiday we are keeen to see him on Tuesday upon his return. Ben has an infection in him abdominal would but I am not sure what the score is with that? With regard to the perianal wound - its healed now :))
Crapsville for everyone at the minute
Kerry
Urologically Ben seems to be responding well to the antibiotic the microbiologists have put him on. As long as he continues to respond he will be able to continue the treatment at home. The doctors are talking about Ben coming back home again on Tuesday. Mr Junaid his consultant urologist has been away on holiday we are keeen to see him on Tuesday upon his return. Ben has an infection in him abdominal would but I am not sure what the score is with that? With regard to the perianal wound - its healed now :))
Crapsville for everyone at the minute
Kerry
Thursday, 25 August 2011
Thursday 25th August
Bens feeling a bit poo again today :(
I managed to speak to the Uroogist earlier today - he is still showing signs of infection even though both catheters have been changed. The bacteria is not responding to the antibiotic being used so the microbiologist has requested the current medication is stopped until the results of the latest urine and blood tests are back. This will take a couple of days.
In th meantime, still here getting on with it :(
Bens still in bed as he feels crap, such a backward step literally!
I managed to speak to the Uroogist earlier today - he is still showing signs of infection even though both catheters have been changed. The bacteria is not responding to the antibiotic being used so the microbiologist has requested the current medication is stopped until the results of the latest urine and blood tests are back. This will take a couple of days.
In th meantime, still here getting on with it :(
Bens still in bed as he feels crap, such a backward step literally!
Wednesday, 24 August 2011
Wednesday 24th August
Hello Bloggers
Bens been making good progress with the frame and crutch support. He has been in good spirits and working hard with his physio.
Its been really difficult getting info out of anyone and speaking to the Doctors. The nurses are sooooooooo busy and are in short supply they seem to start and job and dont get round to finshing
it :(
Tissue viability came on Monday and assessed Bens abdo wound - its looking a lot better so thats good news. Yesterday was a shit day he went down to theatre eventually to get his catheters changed. He didnt recover very well and was in a lot of pain. This morning was crap for him as well.
Its coming up to 1800 and he's a lot better now. He is eating and drinking properly but still has a lot of pain in his stomach - prob from the proceedure and being being man handled in theatre.
More bloods and urine have been taken and once the cultures are back we will know when Ben is able to come home again. He is still on the anti-biotic drip.
Bens been making good progress with the frame and crutch support. He has been in good spirits and working hard with his physio.
Its been really difficult getting info out of anyone and speaking to the Doctors. The nurses are sooooooooo busy and are in short supply they seem to start and job and dont get round to finshing
it :(
Tissue viability came on Monday and assessed Bens abdo wound - its looking a lot better so thats good news. Yesterday was a shit day he went down to theatre eventually to get his catheters changed. He didnt recover very well and was in a lot of pain. This morning was crap for him as well.
Its coming up to 1800 and he's a lot better now. He is eating and drinking properly but still has a lot of pain in his stomach - prob from the proceedure and being being man handled in theatre.
More bloods and urine have been taken and once the cultures are back we will know when Ben is able to come home again. He is still on the anti-biotic drip.
Saturday, 20 August 2011
Friday 19th August
Hello Bloggers
Another amazing progress day for Ben :))
Just to get the other bit and bobs out of the way first we are still waiting for the microbiologists results to come back about the infection. He is on an antibiotic drip until they come back which will probably be Monday or Tuesday. Looks like his abdominal wound might be a bit unhappy so we have the tissue viability nurse coming to see us on Monday lunchtime. Ben is in good spirits and I think quite enjoying the change of scenery!
Theres a good chance he will go back to theatre early next week.
The nursing staff are in short supply and Ben is getting on their case lol ;))
Standing man transforms to walking man - woop woop
Ben had a visit from 'Ben the physio' unfortunately for hm he turned up with a shit wheelchair so we sent him packing and told him not to return until he found something better ;) He returned half an hour later with a very nice little wheelchair in tow - thanks a lot Ben :)) (think he was a little scared of me lol)
That out of the way and without to much instruction 'Ben the physio' asked 'ben the standing man' to WALK and he did all the way round the ward!! Staaby decked out in designer pyjama shorts, blue and white stripey shoes and silver zimmer frame did the catwalk - closely followed by mother holding bag of wee and wearing a big smile :))
WELL DONE THAT MAN !!!!
Thanks to Alex for a great visit and workout - you are such a lovely guy x
Beno cant wait to see what Saturday brings???? You continue to prove the doctors wrong and smash all the targets!
So excited for you Ben
Love loads
xx
Photo's to follow
Another amazing progress day for Ben :))
Just to get the other bit and bobs out of the way first we are still waiting for the microbiologists results to come back about the infection. He is on an antibiotic drip until they come back which will probably be Monday or Tuesday. Looks like his abdominal wound might be a bit unhappy so we have the tissue viability nurse coming to see us on Monday lunchtime. Ben is in good spirits and I think quite enjoying the change of scenery!
Theres a good chance he will go back to theatre early next week.
The nursing staff are in short supply and Ben is getting on their case lol ;))
Standing man transforms to walking man - woop woop
Ben had a visit from 'Ben the physio' unfortunately for hm he turned up with a shit wheelchair so we sent him packing and told him not to return until he found something better ;) He returned half an hour later with a very nice little wheelchair in tow - thanks a lot Ben :)) (think he was a little scared of me lol)
That out of the way and without to much instruction 'Ben the physio' asked 'ben the standing man' to WALK and he did all the way round the ward!! Staaby decked out in designer pyjama shorts, blue and white stripey shoes and silver zimmer frame did the catwalk - closely followed by mother holding bag of wee and wearing a big smile :))
WELL DONE THAT MAN !!!!
Thanks to Alex for a great visit and workout - you are such a lovely guy x
Beno cant wait to see what Saturday brings???? You continue to prove the doctors wrong and smash all the targets!
So excited for you Ben
Love loads
xx
Photo's to follow
Thursday, 18 August 2011
Thursday 18th August
So Ben standing - brill stuff
He is back in Barts with an infection but is actually fine in himself. He's hooked up to an antibiotic drug and having blood tests and shit again - they think he will be for a week with poss a trip to theatre planned for early next week.
I am off to the hospital shortly to try to get the physios to work with Ben whilst he is there. Its really important that now he had the go ahead he 'gets going'. He needs some sort of gutter frame to start off with. We are all really excited for Ben and he cant wait to learn to walk again :))
Ben is in Bedford Fenwick ward at Barts its situated around the main square and is on 2nd floor. Visitors welcome to come and workout with Ben. Nearest tube is St Pauls and visiting is from 2 - 8pm restricted to 3 around the bed so either call first or take your chances. Coffee with 3 sugars cake and reading material always welcome xx
Ben the 'standing man' been doing a lot of growing the past few months as he's 6' 7" now woo!
He is back in Barts with an infection but is actually fine in himself. He's hooked up to an antibiotic drug and having blood tests and shit again - they think he will be for a week with poss a trip to theatre planned for early next week.
I am off to the hospital shortly to try to get the physios to work with Ben whilst he is there. Its really important that now he had the go ahead he 'gets going'. He needs some sort of gutter frame to start off with. We are all really excited for Ben and he cant wait to learn to walk again :))
Ben is in Bedford Fenwick ward at Barts its situated around the main square and is on 2nd floor. Visitors welcome to come and workout with Ben. Nearest tube is St Pauls and visiting is from 2 - 8pm restricted to 3 around the bed so either call first or take your chances. Coffee with 3 sugars cake and reading material always welcome xx
Ben the 'standing man' been doing a lot of growing the past few months as he's 6' 7" now woo!
Thursday 18th August
What a day yesterday!
BEN ACTUALLY STOOD UP FOR THE FIRST TIME IN 3 MONTHS!!!!!!!!!!!
OMG - so scary -Well done to the bestest standing up boy in the world
Another milestone - well done darling
BEN ACTUALLY STOOD UP FOR THE FIRST TIME IN 3 MONTHS!!!!!!!!!!!
OMG - so scary -Well done to the bestest standing up boy in the world
Another milestone - well done darling
Tuesday, 16 August 2011
Tuesday 16th August
:(((
Bens got a nasty bacterial infection that needs IV antibiotics so he is going into Barts tomorow for a week
Bens got a nasty bacterial infection that needs IV antibiotics so he is going into Barts tomorow for a week
Monday, 15 August 2011
Monday 15th August
Morning all,
We're still here , the past week we havn't had any hospital appointments which is nice :))
Ben's continuing to recover really well. He is getting in and out of bed to his new chair or wheelchair and working hard with his exercises. The new physio Toni is great :) she really is pulling out all the stops for Ben - there is a meeting this morning to discuss his rehab she is hoping that spinal team will take him on board to work more with the right leg and foot, then Toni will also have him under her care for physio as well. She has referred him to the feet peeps to get a night splint made which will help to keep Bens foot in the correct position. We have lots of new exercises to do, the days need to be longer to fit everthing in!
Bens been a bit emotional on and off this week I really think he has just about had enough and is ready for the next stage - Wednesday cant come soon enough - I am sure his surgeon will tell him 'its time to stand'
scary scary scary but he is well ready. So again all your positive energy blown this way please.
We're still here , the past week we havn't had any hospital appointments which is nice :))
Ben's continuing to recover really well. He is getting in and out of bed to his new chair or wheelchair and working hard with his exercises. The new physio Toni is great :) she really is pulling out all the stops for Ben - there is a meeting this morning to discuss his rehab she is hoping that spinal team will take him on board to work more with the right leg and foot, then Toni will also have him under her care for physio as well. She has referred him to the feet peeps to get a night splint made which will help to keep Bens foot in the correct position. We have lots of new exercises to do, the days need to be longer to fit everthing in!
Bens been a bit emotional on and off this week I really think he has just about had enough and is ready for the next stage - Wednesday cant come soon enough - I am sure his surgeon will tell him 'its time to stand'
scary scary scary but he is well ready. So again all your positive energy blown this way please.
Monday, 8 August 2011
Tuesday 9th August 2011
Cant believe we have been home since 30th July! just dont know where the time goes, theres just not enough hours in the day to get everything done
Ben is making great progress in all areas - and so he continues to amaze all of his medical team :))
He is getting very frustrated and just wants to be able to stand! We have another orthopaedic appointment on 17th August to assess the his pelvis/hips to see if he can put any weight through his legs - next stage will be to get Ben up with a frame!
Occupational health are still being crap!
Banned the old physio from my house :)
Got a new more experienced physio who seems to be great - (so far) she sounds like she knows what she's talking about and we feel confident so thats good :)
Got the chair we were after for Ben to be able to transfer to so thats good :)
Bought a slide board as occupational health are shite - managed to get Ben out for a couple of hours on Saturday evening which was great :) Bed to wheelchair and with help of the slid board transfer to car/cab - well done Beno :))
Thanks a millions to the lads for helping out with Bens work outs at home - need some help this week Weds/Fri/Sat and Sunday please, please, please - give either Ben or me a buzz if you can spare a couple of hours?
As always thanks to everyone for their continued support
xx
Ben is making great progress in all areas - and so he continues to amaze all of his medical team :))
He is getting very frustrated and just wants to be able to stand! We have another orthopaedic appointment on 17th August to assess the his pelvis/hips to see if he can put any weight through his legs - next stage will be to get Ben up with a frame!
Occupational health are still being crap!
Banned the old physio from my house :)
Got a new more experienced physio who seems to be great - (so far) she sounds like she knows what she's talking about and we feel confident so thats good :)
Got the chair we were after for Ben to be able to transfer to so thats good :)
Bought a slide board as occupational health are shite - managed to get Ben out for a couple of hours on Saturday evening which was great :) Bed to wheelchair and with help of the slid board transfer to car/cab - well done Beno :))
Thanks a millions to the lads for helping out with Bens work outs at home - need some help this week Weds/Fri/Sat and Sunday please, please, please - give either Ben or me a buzz if you can spare a couple of hours?
As always thanks to everyone for their continued support
xx
Thursday, 4 August 2011
Thursday 4th August 2011
Sorry no visitors today please the boy and his mother are creamed :(
Thanks a bundle x
Thanks a bundle x
Thursday 4th August 2011
Home 05.30
What a nightmare ambulance booked at 20.00 last night and arrived 04.45 today to bring us home.
Shit start to yesterday, FAB WANG NEWS (Rachel!!!!!!!!!!!!!!!!!!!!!!!) Shit end to the day
Sleeping beauty - sleeps ;))
What a nightmare ambulance booked at 20.00 last night and arrived 04.45 today to bring us home.
Shit start to yesterday, FAB WANG NEWS (Rachel!!!!!!!!!!!!!!!!!!!!!!!) Shit end to the day
Sleeping beauty - sleeps ;))
Wednesday, 3 August 2011
Wednesday 3rd August 2011
Operation day - Urology at Barts - big day!
Not a great start Dumb and Dumber arrive hour and half late to take us to the hospital. They were meant to be with us at 0500 and turned up at 06.35 - so stressful! :(( Poor Ben has been waiting for this day and so anxious he wont get to the hospital in time for his operation.
I was so angry and didnt I let them know it! Lazy bastards should have got up earlier, he said he was tired and didnt like early mornings, I told him to get a new job! WANKERDOM!
We were late grrrrrrrrrrr!
Ben was meant to go down to theatre for about 1.5 hours but disappeared for 3 hours :((
The point of today was to find out what Bens bladder and urethra have been doing for the past 3 months?
When he was brought back up from theatre Ben was in a lot of pain so they morphed him up again and he was out of it - I took this opportunity to stick my head under the sheets to inspect his man bits - ummmmmmmm lol sorry Ben I saw your shiny nob!
So what did I find? two new catheters, one was draining into the bladder via the supra pubic and the other was draining out from willy. No sign of open perineal surgery so that was smiley face - ummmmmmmm - took a little visit to the nurses station and fell face first into a note written to the nurses from the consultant about Bens operation - so I had a little peak - ummmmmmmmm seems positive but not gonna get excited until surgeon comes to talk to us.
Ha ha move over Sherlock ;))
Well we only had to wait about 5 hours :(( as he didnt come back from theatre - but thats fine he was making someone else better :))
Our man Alastair came through - he said they were really amazed by Bens recovery to date! They didnt expect what they found because of the severity of the injury..............................we knew Ben had suffered trauma the his urethra and that it had split and needed a splint -today he told that when they did the emergeny surgery after the accident Bens urethra was totally disrupted and hanging out from underneath him. They were not able to insert the catheter at this time because they couldnt find the ends. When Ben went back to surgery to repair his pelvic floor repair two days later they tried again and managed to put the catheter/splint in. (thanks god) The surgeons were sceptical about the recovery to this area.
Today Ben was told that his urethra was back together in one piece and well on the way to being repaired. His catheters have been reduced in girth (ouch - thats good :)) and he has another 8 weeks with them in place - then back in for another proceedure to re-evaluate. At this stage things will either be ok or nearly ok so there are a couple of options to consider for then.
Such great news, such a great day, Ben the super healer!!!!!!!!!!
So happy for you baby xx
Mumma x
Not a great start Dumb and Dumber arrive hour and half late to take us to the hospital. They were meant to be with us at 0500 and turned up at 06.35 - so stressful! :(( Poor Ben has been waiting for this day and so anxious he wont get to the hospital in time for his operation.
I was so angry and didnt I let them know it! Lazy bastards should have got up earlier, he said he was tired and didnt like early mornings, I told him to get a new job! WANKERDOM!
We were late grrrrrrrrrrr!
Ben was meant to go down to theatre for about 1.5 hours but disappeared for 3 hours :((
The point of today was to find out what Bens bladder and urethra have been doing for the past 3 months?
When he was brought back up from theatre Ben was in a lot of pain so they morphed him up again and he was out of it - I took this opportunity to stick my head under the sheets to inspect his man bits - ummmmmmmm lol sorry Ben I saw your shiny nob!
So what did I find? two new catheters, one was draining into the bladder via the supra pubic and the other was draining out from willy. No sign of open perineal surgery so that was smiley face - ummmmmmmm - took a little visit to the nurses station and fell face first into a note written to the nurses from the consultant about Bens operation - so I had a little peak - ummmmmmmmm seems positive but not gonna get excited until surgeon comes to talk to us.
Ha ha move over Sherlock ;))
Well we only had to wait about 5 hours :(( as he didnt come back from theatre - but thats fine he was making someone else better :))
Our man Alastair came through - he said they were really amazed by Bens recovery to date! They didnt expect what they found because of the severity of the injury..............................we knew Ben had suffered trauma the his urethra and that it had split and needed a splint -today he told that when they did the emergeny surgery after the accident Bens urethra was totally disrupted and hanging out from underneath him. They were not able to insert the catheter at this time because they couldnt find the ends. When Ben went back to surgery to repair his pelvic floor repair two days later they tried again and managed to put the catheter/splint in. (thanks god) The surgeons were sceptical about the recovery to this area.
Today Ben was told that his urethra was back together in one piece and well on the way to being repaired. His catheters have been reduced in girth (ouch - thats good :)) and he has another 8 weeks with them in place - then back in for another proceedure to re-evaluate. At this stage things will either be ok or nearly ok so there are a couple of options to consider for then.
Such great news, such a great day, Ben the super healer!!!!!!!!!!
So happy for you baby xx
Mumma x
Tuesday 2nd August 2011
Hi bloggers,
Ben had a great couple of hours on Saturday evening it was Steve's birthday and the plan was to get Ben there for a little bit of fun boy time. As he is managing a good 3 hours comfortably in his chair we tried to book a black cab over to Seven Kings but the greedy bleeders wanted £30.00 each way for a 4.6 mile journey!!
Plan B
Ben in wheel chair, my jag in road, Dave, me, Alex G and the Rach in situ - Wheelchair in situ by back door of the Jag - then bobs your uncle Beno used his guns - with the aid of my roof rack and shirt hanger (inside the car) he monkey barred himself in - woop way to go!
Another first and another emotional time :))
Ben had a great evening, when he got home it was tough getting back out oops! work in progress - slide board on its way :))
Woop woop x
Oh yeh and he was shagged most of Sunday lol
Ben had a great couple of hours on Saturday evening it was Steve's birthday and the plan was to get Ben there for a little bit of fun boy time. As he is managing a good 3 hours comfortably in his chair we tried to book a black cab over to Seven Kings but the greedy bleeders wanted £30.00 each way for a 4.6 mile journey!!
Plan B
Ben in wheel chair, my jag in road, Dave, me, Alex G and the Rach in situ - Wheelchair in situ by back door of the Jag - then bobs your uncle Beno used his guns - with the aid of my roof rack and shirt hanger (inside the car) he monkey barred himself in - woop way to go!
Another first and another emotional time :))
Ben had a great evening, when he got home it was tough getting back out oops! work in progress - slide board on its way :))
Woop woop x
Oh yeh and he was shagged most of Sunday lol
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